The 'Sleeping Beauty' syndrome which makes student nod off for a MONTH at a time

Monday, August 15, 2011

ေခတ္သစ္အိပ္ေပ်ာ္ေနတဲ ့မင္းသမီးေလး...


Sleeping beauty: Lily can lose months at a time due to a rare disorder
အိပ္မက္ထဲမွာ သူရယ္၊ ကုိယ္ရယ္...
Sleeping beauty: Lily can lose months at a time due to a rare disorder

သည္မိန္းကေလးကေတာ ့ေခတ္သစ္ေမာ္ဒန္ အိပ္ေပ်ာ္ေနတဲ ့မင္းသမီးေလးလို ့ေခၚဆုိရမေလာက္ပါပဲ...
ၿဗိတိန္နုိင္ငံမွ အသက္ ၂၁ ႏွစ္အရြယ္ရွိ ေက်ာင္းသူေလးတစ္ဦးၿဖစ္သည္ ့လီလီကလာ ့ခ္ ဟာ ရွားပါးပါးၿဖစ္
ေတာင္ ့ၿဖစ္ခဲ Kleine-Levin ဟုေခၚသည့္ အခ်ိန္အႀကာႀကီးအိပ္ေပ်ာ္တတ္သည္ ့ေရာဂါၿဖင္ ့၇ လတစ္ႀကိမ္
တစ္ခါအိပ္ေပ်ာ္လွ်င္ တစ္လမွ ႏွစ္လအထိ အိပ္ေပ်ာ္ေနေလ ့ရွိပါတယ္လို ့လန္ဒန္ထုတ္ သူရိယသတင္းစာ
ႀကီးႏွ ့ေဒလီေမးလ္သတင္းစာႀကီးမ်ားက ေဖၚၿပခဲ ့ႀကပါတယ္...

Lily's mother Adele (pictured, left) took her daughter to see a battery of specialists, but none of them could diagnose her
 ဆရာ၀န္ေတြေတာင္ လက္မွဳိင္ခ်ရ...
Lily's mother Adele (pictured, left) took her daughter to see a battery of specialists, but none of them could diagnose her

သူမဟာ စာေမးပြဲက်င္းပေနခ်ိန္မ်ား၊ ခရစ္စမတ္ပဲြေတာ္မ်ား၊ ႏွစ္သစ္ကူးပဲြေတာ္အခ်ိန္မ်ားမွာပင္ အိပ္ေပ်ာ္
ေနေလ ့ရွိခဲ ့ပါတယ္....
သူမရဲ ့သမီးေလးဟာ ဘ၀ရဲ ့အစိတ္အပုိင္းေတာ္ေတာ္မ်ားမ်ားကုိ အိပ္စက္ေနခဲ ့ရလုိ ့ဘာမွမသိပဲ လက္
လြတ္ဆံုးရွဳံးေနခဲ ့ရပါတယ္ လို ့အသက္ ၄၇ ႏွစ္ရွိ မိခင္ၿဖစ္သူ အဒယ္လီ ကဆုိပါတယ္...

လီလီရဲ ့ထူးဆန္းအံ ့ႀသဖြယ္ရာ အၿဖစ္အပ်က္ဟာ ၂၀၀၇ ခုႏွစ္တံုးက သူမတုိ ့မိသားစု ေရခဲၿပင္စကိတ္စီး
ၿပီးေနာက္ စားေသာက္ဆုိင္မွာသြားေရာက္စားေသာက္ခဲ ့ရာမွစတင္ခဲ ့ပါတယ္...
" မွာထားတဲ ့အစားအစာေတြမေရာက္လာခင္မွာပဲ လီလီ ဟာသူမရဲ ့ကုလားထုိင္ေပၚမွာပဲအိပ္ေပ်ာ္သြားခဲ ့
ပါတယ္...  ကြ်န္မတုိ ့သူ ့ကုိဘယ္လိုမွ ႏုိးလုိ ့မရေတာ ့တာမုိ ့စားေသာက္ဆုိင္ကေန ေပြ ့ခ်ီေခၚယူခဲ ့ရပါ
တယ္..." လုိ ့မိခင္ၿဖစ္သူက ဆုိပါတယ္...


Lily with her sister Georgie (left0, her mother and brother Charlie: The condition put the whole family under strain
 ညီမေလး၊ ေမာင္ေလး၊ ေမေမ ႏွင့္  လီလီ တုိ ့အမွတ္တရဓါတ္ပံု...
တစ္ခါအိပ္ယင္ တစ္လကေန ႏွစ္လ အထိႀကာတာမုိ ့မိသားစုအားလံုး စုိးရိမ္ေသာကေရာက္ႀကရ...
Lily with her sister Georgie (left), her mother and brother Charlie: The condition put the whole family under strain

ကံမေကာင္းအေႀကာင္းမလွစြာပင္ ထုိေရာဂါဆန္းအတြက္ ေပ်ာက္ကင္းေစနုိင္မည္ ့ေဆး၀ါးတစ္စံုတစ္ရာ
မေပၚေပါက္နုိင္ေသးေပမယ့္ ေဆးပညာရွင္မ်ားကေတာ ့ထုိေရာဂါဟာ ငယ္ရြယ္သူမ်ား၌သာၿဖစ္တတ္ေလ ့
ရွိတာမုိ ့လီလီ အေနနွင္ ့အသက္အရြယ္ႀကီးရင္ ့လာသည္ ့အခါေပ်ာက္ကင္းသြားနုိင္မယ္လုိ ့ေမွ်ာ္လင္ ့ယံု
ႀကည္ႀကပါတယ္....
လီလီကေတာ ့ဆာေရးအရပ္ရွိ မိဘမ်ားေနအိမ္တြင္ တစ္ခါတစ္ခါအိပ္ေမာက်သြားလွ်င္ အစားအစာစားဖုိ ့
ေလာက္သာ နုိးၿပီးၿပန္လည္အိပ္ေပ်ာ္သြားေနခဲ ့တတ္ပါတယ္...
သူမဟာ သံုးႏွစ္အတြင္းမွာ ေဆးပညာရွင္ႀကီးေပါင္း ၇ ေယာက္ေၿပာင္းၿပီး ၿပသခဲ ့ကာ စမ္းသပ္စစ္ေဆးမွဳ
ေတြမ်ဴိးစံုၿပဳလုပ္ခဲ ့ေပမယ့္ အေၿခအေနအေႀကာင္းအရင္းအမွန္ကုိမသိခဲ ့ရပဲ သူမရဲ ့မိခင္အေနႏွင္ ့ေဒလီ
ေမးသတင္းစာတြင္ ထုိကဲ ့သုိ ့ေသာ အခ်ိန္ႀကာၿမင္ ့စြာအိပ္ေပ်ာ္ေနသူအေႀကာင္းကုိ ၂၀၁၀ ခုႏွစ္၊ ေဖေဖာ္
၀ါရီလတြင္ ေဖာ္ၿပထားသည္ကုိ ဖတ္ရွဳမိရာမွ ေ၇ာဂါအေႀကာင္းသိရွိခဲ ့ရတာၿဖစ္ပါတယ္...

အဒယ္လီဟာ သူမ၏သမီးကဲ ့သုိ ့ပင္ အခ်ိန္ႀကာၿမင္ ့စြာအိပ္ေပ်ာ္ေနေလ ့ရွိသည္ ့သားသမီးမ်ား၏မိခင္ၿဖစ္
သူ ၿဗိတိန္နုိင္ငံသူ အမ်ဴိးသမီးႏွစ္ဦးႏွင္ ့ေတြ ့ဆံုခဲ ့ၿပီး ထုိေရာဂါဆန္းအေႀကာင္း လူအမ်ားက်ယ္က်ယ္ၿပန္ ့
ၿပန္ ့သိရွိနုိင္ရန္ www.kls-support.org.uk ဟူေသာအင္တာနက္စာမ်က္ႏွာ၊ ၀က္ဘ္ဆုိဒ္ကုိ တည္ေထာင္
ဖန္တီးခဲ ့ပါတယ္...
ထုိအေႀကာင္းအရာအခ်က္အလက္မ်ားပုိမုိသိရွိလုိပါက  အထက္ပါအင္တာနက္စာမ်က္ႏွာသို ့သြားေရာက္
ေလ ့လာႀကည္ ့ရွဳနုိင္ပါတယ္...

၂၀၁၀ ခုႏွစ္တံုးက ထုိကဲ ့သုိ ့အခ်ိန္ကာလႀကာၿမင္ ့စြာအိပ္ေမာက်တတ္သူေလးအေႀကာင္းလည္း ကြ်န္
ေတာ္ ဘာသာၿပန္တင္ၿပခဲ ့ဖူးပါတယ္...
အဲဒီသတင္းကေတာ ့ဒီ မွာပါ...

သူတုိ ့နဲ ့ရတဲ ့ေယာက်ာၤးေတာ ့ဟန္က်တာပဲ...
အိပ္ေပ်ာ္ေနတဲ ့ကာလတစ္ေလွ်ာက္လံုး ႀကဳိက္တဲ ့ေနရာသြား၊ ႀကဳိက္တာလုပ္ေနနုိင္တယ္...


She could be this generation’s sleeping beauty…
A female student in the United Kingdom sleeps up to two months at a time, every seven months, reported The Sun.Lily Clarke suffers from the rare Kleine-Levin Syndrome.
She slept through exams, Christmas and New Year.
Lily’s mother Adele, 47, said she is missing out on a big chunk of her life.
Liliy's curious condition began in 2007 after the family went for food after an ice-skating session.
She said, "Before the food arrived Lily had fallen asleep in her chair. We couldn't wake her and had to carry her from the restaurant."
Unfortunately, there is no known cure for the syndrome but medics believe it affects young people - so Lily may grow out of it.
Lily is woken just long enough to be fed at her parents' home in Surrey.

Lily Clarke, 21, has a rare condition called Kleine-Levin syndrome, which makes her nod off for a month at a time. She wakes only to eat and drink before returning to slumber.
Over three years she was seen by seven different consultants and underwent a battery of medical tests, but was only diagnosed when her mother read about a similar case in the Daily Mail in February 2010.
Adele met with two other British mothers who had children with the rare syndrome and together they set up the website www.kls-support.org.uk to raise awareness.

For more information visit the KLS website at www.kls-support.org.uk
 

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