The schoolgirl who 'cries' blood and bleeds through her pores

အလိုအေလ်ာက္ေသြးယုိစိမ္ ့သည္ ့ကေလးမေလး....

 

 

 

ထူးဆန္းေပသည့္ ....ေရာဂါဆန္း....

Unique case: Twinkle Dwivedi has an undiagnosed disorder which means she loses blood through her skin without being cut or scratched

အိႏၵိယနုိင္ငံမွ အသက္ ၁၄ ႏွစ္ရွိ Twinkle Dwivedi အမည္ရွိေက်ာင္းသူေလးတစ္ဥိးဟာ သူမ
ရဲ ့ခႏၶာကုိယ္ ဒြါရအေပါက္မ်ားမွ ေန၍ ေသြးမ်ားအလုိအေလ်ာက္စီးထြက္လာေလ ့ရွိသၿဖင္ ့ ဆ
ရာ၀န္မ်ားအေနၿဖင္ ့အေႀကာင္းအရင္းမွန္ကုိ စဥ္းစား၍မရနုိင္ေအာင္ၿဖစ္ခဲ ့ရေလသည္...
သူမအေနၿဖင္ ့ တစ္စံုတစ္ရာ ထိခုိက္ဒါဏ္ရာမရရွိပါပဲလွ်က္ၿဖင္ ့ အေရၿပားမ်ားဆီကပါ ေသြး
မ်ားထြက္လာတတ္သၿဖင္ ့မည္သည္ ့ေရာဂါဟုပင္ အမည္မတတ္နုိင္သည္ ့ အေၿခအေနသုိ ့
ေရာက္ရွိေနရေပသည္...



အိႏၵယနုိင္ငံ၊ ဥတၱရာပရာေဒ ့ရွ္ၿပည္နယ္၊ လကၡဏာ ၿမဳိ ့ေလးမွ ဆယ္ေက်ာ္သက္ကေလးမ
ေလးဟာ သူမရဲ ့မ်က္လံုး၊ႏွာေခါင္း၊လည္ပင္းနဲ ့ေၿခဖ၀ါးေတြမေန တစ္ေန ့လွ်င္ေသြးမ်ား အခါ
ငါးဆယ္ခန္ ့မွ်ထြက္တတ္၍ ေသြးအစားထုိး ေသြးသြင္းမွဳမ်ားပင္ ၿပဳလုပ္ခဲ ့ရပါသည္...

” ကြ်န္မရဲ ့မ်က္လံုးေတြ၊ လက္ေတြ၊ ေခါင္းနဲ ့နား၊ႏွာေခါင္း၊လည္ေခ်ာင္း ၊ ခႏၶာကုိယ္ေနရာအႏွံ ့အ
ၿပားကကို ေသြးေတြ စိမ္ ့ထြက္ေလ ့ရွိပါတယ္...စစခ်င္းေသြးထြက္လာယင္ေတာ ့မနာက်င္ပါဘူး...
ဒါေပမယ္ ့လူကနံုးခ်ိၿပီးေမာပန္းေနတတ္ပါတယ္...တစ္ခါတစ္ေလဆုိ ေခါင္းေတြပါကိုိက္ခဲလာတတ္
ပါတယ္...” လို ့သူမက ဆုိခဲ ့ပါသည္....

အဂၤလန္နုိင္ငံတြင္ ေဆးကုသေပးေနသည္ ့ကေလးသူငယ္ဆုိင္ရာ ေသြးအထူးကု ဆရာ၀န္ႀကီး
ေဒါက္တာေဂ်ာ ့ဘူခ်ာနန္ ဟာ ကေလးမေလးရဲ ့ေရာဂါဆန္းကုိ ႀကည္ ့ရွဳစမ္းသပ္စစ္ေဆးရန္ အိႏိၵ
ယ နုိင္ငံသို ့သြားေရာက္ခဲ ့ ပါသည္...


သူဟာ မြန္ဘုိင္းၿမဳိ ့မွာရွိတဲ ့ဂ်က္စ္လြတ္ေဆးရံုမွာ ကေလးမေလးနဲ ့သူမရဲ ့မိသားစုကုိသြားေရာက္ေတြ ့
ဆံုၿပီး သူမရဲ ့ထူးဆန္းစြာေသြးထြက္ေနမွဳကုိစမ္းသပ္ေလ ့လာ ခဲ ့ပါသည္...
” အခုလုိမ်ဴိး လူတစ္ေယာက္ရဲ ့ဦးေခါင္းအေရခြံ၊ လက္ဖ၀ါး စတာေတြဆီကေနေသြးေတြအလုိ
လုိ စိမ္ ့ထြက္ေနတာကုိတစ္ခါမွမေတြ ့ဖူးသလုိ၊ ေဆးပညာသမုိင္းစာေစာင္၊ စာတမ္းေတြမွာလည္း
တစ္ခါမွ မဖတ္ဖူးခဲ ့ပါဘူး...အဲဒါနဲ ့ဒီကေလးမေလး Twinkle ရဲ ့ေရာဂါဆန္းကို စိတ္၀င္စားမိၿပီး
ကုသေပးနုိင္မလားလုိ ့သိခ်င္လာပါတယ္...”  လုိ ့သူကဆုိခဲ ့ပါသည္...

အထူးကုဆရာ၀န္ႀကီးကုိ ေခါင္းၿဖီးလုိ ့ဆံပင္ေတြ ခြဲလုိက္တာနဲ ့တင္ေသြးေတြထြက္လာတာ ကုိ
ကိုယ္တုိင္မ်က္ၿမင္ကိုယ္ေတြ ့သိရေအာင္ မိသားစုတည္းခုိတဲ ့ဟုိတယ္အခန္းကုိ ဖိတ္ေခၚၿပသ
ခဲ ့ပါသည္...ဆရာ၀န္ႀကီးကိုယ္တုိင္ေရာက္ရာၿပီး စမ္းသပ္စစ္ေဆးေသာအခါ တစ္ၿခား ထိခုိက္
ရွရာ၊ ပြန္းပဲ ့သည္ ့ဒါဏ္ရာ သို ့မဟုတ္ နီၿမန္းေရာင္ကုိင္းၿခင္းမ်ားလည္း တစ္ခုမွ်မေတြ ့ခဲ ့ရသည္ ့
အတြက္ ထိတ္လန္ ့အံ ့ႀသခဲ ့ရပါသည္...

” ပကတိအေနအားၿဖင္ ့ ဘာဒါဏ္ရာအနာတရမွမၿဖစ္ပဲ အေရၿပားကေနေသြးေတြစိမ္ ့ထြက္လာဖုိ ့
ဆုိတာ မၿဖစ္နုိင္ပါဘူး...အခုေတာ ့သူမရဲ ့ခႏၶာကုိယ္မွာ ထိခုိက္၊ပြန္းပဲ ့တဲ ့ဒါဏ္ရာတစ္ခုမွမေတြ ့ရ
ပါဘူး...” လို ့ဆရာ၀န္ႀကီးက ဆုိခဲ ့ပါတယ္...



Twinkle ေလး၏မိခင္ၿဖစ္သူအလွၿပဳၿပင္ေရးဆုိင္ဖြင္ ့ထားၿပီး သမီးေလးေယာက္တုိ ့အားလည္း
ႀကည္ ့ရွဳေစာင္ ့ေရွာက္ေနရေသာ အသက္ ၄၃ ႏွစ္ရွိ  Nandani Diwedi ကေတာ ့သူမတုိ ့အေန
နဲ  ့ရွိခုိးဆုေတာင္းတာေတြေရာ၊ ေဆး၀ါးမ်ဴိးစံု၊ ေဆးခန္း၊ေဆးရံုမ်ဴိးစံု နည္းမ်ဴိးစံုနဲ ့ကေလးမေလး
ရဲ ့ေရာဂါေပ်ာက္ကင္းေအာင္ႀကဳိးစားခဲ ့ၿပီးပါၿပီ...တစ္ခါတစ္ေလေတာ ့လည္း အဲဒီလို ဘာသာေရး
ေရာ၊ ေလာကီေဆးပညာနဲ ့ပါ ႏွစ္မ်ဴိးလံုးသံုးၿပီးကုသရပါတယ္...သူမရဲ ့သမီးေလး အခုလုိၿဖစ္ေန
တာေတြ ့ရေတာ ့သူမအေနနဲ ့ထိခိုက္နာက်င္ခံစားရပါတယ္...သမီးၿဖစ္သူနဲ ့အတူတူ ခံစားရပါ
တယ္လုိ ့ဆုိခဲ ့ပါသည္...

 ထူးဆန္းလြန္းလို ့....

အဂၤလန္က ဆရာ၀န္ႀကီးကုိယ္တုိင္လာေရာက္စမ္းသပ္စစ္ေဆးရတယ္....

American expert Dr George Buchanan observes Twinkle bleeding from her eyes at the Jaslok Hospital in Mumbai

ဆရာ၀န္ႀကီး ဘူခ်နန္နွင္ ့သူ၏ေဆးအဖဲြ ့ဟာ ကေလးမေလးရဲ ့အေရၿပားကုိ ၿဖတ္ေတာက္ၿခင္း
အပါအ၀င္ အၿခားေသာနည္းမ်ဴိးစံုနွင္ ့ပါ သူမအေနၿဖင္ ့အခ်ိန္မည္မွ်ႀကာမွ ေသြးတိတ္တတ္သည္
ကုိသိနုိင္ရန္စမ္းသပ္ခဲ ့ႀကပါတယ္...

ထုိစမ္းသပ္ခ်က္မ်ားအရ သူမထံတြင္ လြန္စြာမၿပင္းထန္သည္ ့ေသြးခဲေစၿခင္းကုိကစဥ္ ့ကလ်ားၿဖစ္
ေစသည္ ့အေၿခအေနတစ္မ်ဴိးေတြ ့ရွိခဲ ့ရသည္...သို ့ေသာ္ ထုိအခ်က္တစ္ခုတည္းကပင္ သူမအေန
ၿဖင္ ့အလိုအေလ်ာက္ေသြးယုိစိမ္ ့မွဳၿဖစ္ပြားၿခင္း ေက်နပ္ေလာက္ေအာင္၊ လံုေလာက္ေအာင္ေၿဖ
ရွင္းမၿပနုိင္ခဲ ့ေပ...
ဆရာ၀န္ႀကီးအေနၿဖင္ ့ကေလးမေလးကိုယ္တုိင္၊ သုိ ့မဟုတ္ သူမရဲ ့မိခင္ ကသာတမင္တကာ
ေသြးထြက္ေအာင္ၿပဳလုပ္ခဲ ့ေနသလားလုိ ့လည္း စစ္ေဆးခဲ ့ပါေသးသည္...

ဟိႏၵဴဘာသာ၀င္ၿဖစ္သည္ ့ Twinkle က ” ကြ်န္မက ကိုယ္ ့ကုိယ္ကုိေသြးထြက္ေအာင္မလုပ္ခဲ ့ပါ
ဘူး....ဘာၿဖစ္လုိ ့ကြ်န္မက ကုိယ္ ့ကုိယ္ကုိ ေသြးထြက္ေအာင္လုပ္ရမွာလည္း...ဒီလုိႀကီးလည္းၿဖစ္
မေနခ်င္ပါဘူး.... သူမ်ားေတြလုိပဲ ပံုမွန္ေက်ာင္းတက္ေနခဲ ့ခ်င္ပါတယ္...” လို ့ဆုိခဲ ့ပါတယ္...
ယခုလုိ အလုိအေလ်ာက္ေသြးမ်ား ယုိစိမ္ ့ထြက္လာသၿဖင္ ့ ေက်ာင္းႏွစ္ေက်ာင္းကပင္လက္မခံခဲ ့
သၿဖင္ ့သူမအေနၿဖင္ ့ေက်ာင္းမတက္ရသည္မွာ နွစ္ နွစ္ပင္ရွိခဲ ့ၿပီၿဖစ္ပါသည္...

မီးရထားလုပ္သားၿဖစ္သည္ ့သူမ၏ဖခင္ အသက္ ၄၈ ႏွစ္အရြယ္ရွိ Aditya Kumar Diewdi ကလည္း
” ကြ်န္ေတာ္တုိ ့မိသားစုအတြက္ေတာ ့ စုိးရိမ္ထိတ္လန္ ့စရာပါပဲ...ကြ်န္ေတာ္တုိ ့ကေတာ ့Twinkle
ေလးကုိ သက္သာေပ်ာက္ကင္းေအာင္ ကူညီခ်င္တာပါပဲ...” လို ့ဆုိခဲ ့ပါတယ္...

အခုေတာ ့အထူးကုသမွဳ ကြ်မ္းက်င္သူေတြဟာ Twinkle ေလးကုိ ႏွစ္ဆယ္ ့ေလးနာရီ အနီးကပ္
ေစာင္ ့ႀကည္ ့ရုိက္ကူးတဲ ့ကင္မရာေတြတပ္ဆင္ၿပီး ဘယ္လုိမ်ားေသြးစတင္ယိုစိမ္ ့သလည္းဆုိတာ
ေစာင္ ့ႀကည္ ့မွတ္တမ္းတင္ေနႀကပါၿပီ...

” Twinkle နဲ ့သူမရဲ ့မိခင္ဟာ တစ္ဦးကုိတစ္ဦးလြန္စြာ သံေယာဇဥ္ႀကီးႀကပါတယ္... ကြ်န္ေတာ္
ကေတာ ့ဒီလုိအေၿခအေနေႀကာင္ ့ တစ္ခါမွမေတြ ့ခဲ ့ဖူးတဲ ့ေဆးပညာဆုိင္ရာထူးဆန္းတဲ ့ေတြ ့ရွိ
မွဳတစ္ခုၿဖစ္လာလိမ္ ့မယ္လုိ ့အေသအခ်ာသိေနပါတယ္...” လို ့ဆရာ၀န္ႀကီးကဆုိပါတယ္...
သူမရဲ ့ထူးၿခားတဲ ့ေသြးယုိစိမ္ ့မွဳအေႀကာင္းကုိလည္း အဂၤလန္နုိင္ငံက ရုပ္သံလုိင္း -၄ မွာပင္
ၿပည္ ့ၿပည္ ့စံုစံုတင္ဆက္သြားမယ္လုိ ့ဆုိပါသည္...

အဆုိပါ ရုပ္သံအစီအစဥ္မွာဆုိယင္ သူမတုိ ့မိသားစု သူမတုိ ့ေဒသက ေပ်ာက္ေစဆရာဆီသြားေရာက္
ကုသပံု၊ ခရစ္ယာန္ဘုန္းေတာ္ႀကီးဆီသြားေရာက္အကူအညီေတာင္းခံကာ ကူညီကုသမွဳခံယူပံု၊ ေဘး
ဒုကၡ၊ေရာဂါမ်ားေပ်ာက္ကင္းနုိင္တယ္လုိ ့ဟိႏၵဴဘာသာ၀င္ေတြ ယံုႀကည္ ယူဆတဲ ့ဂဂၤါၿမစ္မွာ ေရဆင္း
ခ်ဴိးေနပံုေတြပါ တင္ဆက္မွာၿဖစ္ပါသည္....

မနွစ္တံုးကေတာ ့ အေမရိကန္နုိင္ငံ တင္နက္ဆီၿပည္နယ္ ၊ ေရာ ့ခ္၀ုဒ္ ေဒသက အသက္ ၁၆ ႏွစ္
အရြယ္ရွိ ေကာင္ေလး Inman  လည္း သူ ့မ်က္လံုးမ်ားမွ ေသြးမ်ားက်ေလ ့ရွိလုိ ့အေမရိကန္ဆရာ
၀န္မ်ားက စမ္းသပ္စစ္ေဆး ကုသေပးလွ်က္ရွိပါတယ္လုိ ့ဆုိပါတယ္...



အဂၤလိပ္လုိ သတင္းေလးပါ....
A schoolgirl who spontaneously bleeds from her pores has left doctors baffled.
Indian Twinkle Dwivedi, 14, has an undiagnosed disorder which means she loses blood through her skin without being cut or scratched.
The teenager, from Lucknar, Uttar Pradesh, has even undergone blood transfusions after bleeding from her eyes, nose, hairline, neck and soles of her feet about 50 times each day. She said: 'I bleed from my eyes, my hands, my head, from everywhere. From my ears, nose and eyes as well.
'It doesn't hurt when the bleeding starts. But it makes me tired and sometimes I have headaches.'
Dr George Buchanan, a leading American paediatric blood specialist who has worked in Britain, travelled to India to look into Twinkle's case.
He visited her family at the Jaslok Hospital in Mumbai where he observed her bleeding.
He said: 'I've never seen a case of someone who bleeds spontaneously from their scalp or their palms, or read about it in medical history.
'I was interested to see if I could help Twinkle.'
The doctor was called to the family's hotel room to witness bleeding which began from her hair parting. He was shocked to find no signs of cuts, bruising or redness.
Dr Buchanan said: 'It doesn't seem physically possible for blood to seep through intact skin.
'But I saw no signs of cuts or bruising anywhere on her body.'
Twinkle's mother Nandani Diwedi, 43, who runs a beauty salon as well as caring for her four daughters, said: 'We have tried praying and seeking medical help to cure Twinkle. Sometimes you need to do both.
'It hurts me to see her like this. I share her pain.'
Dr Buchanan and his team carried out a series of tests including cutting Twinkle's skin to time how quickly the bleeding stops.
Tests show she may have a mild form of a clotting disorder, which means her platelets do not stick together properly. But this is not enough to explain the spontaneous bleeding.
Dr Buchanan is also investigating whether Twinkle or her mum cause the bleeding themselves.
Twinkle, a Hindu, said: 'I am not causing this. Why would I want to make myself bleed? 
'I don't want to be like this. I want to go to school and have a normal life.'
She has missed at least two years of education after two schools banned her from classes because of the bleeding.
Her father Aditya Kumar Diewdi, 48, a railway worker, said: 'This is very frightening for my family. We just want to help Twinkle get better.'
Specialists are now planning 24hour monitoring of Twinkle so close-up surveillance cameras can record exactly how the bleeding begins.
Dr Buchanan said: 'There is a healthy relationship between Twinkle and her mother.
'My heart tells me this may be is a condition we have never seen before.'
The mysterious case of Twinkle's bleeding is fully examined in a new BodyShock documentary, The Girl Who Cries Blood, due to air on Channel 4 at 10pm tomorrow.
It also shows Twinkle's family visiting a local mystic, being examined by a Christian bishop for stigmata, and bathing in the River Ganges.
Last year an American boy, Calvino Inman, 16, from Rockwood, Tennessee, also began bleeding from his eyes, and his case is now under investigation by doctors in the US.