ထုိင္းနုိင္ငံမွ ကမာၻ ့အေမႊးအမွ်င္အထူဆံုးမိန္းကေလး....
သူမအားေခၚဆုိႀကသည္ ့နာမည္ေၿပာင္မ်ားတြင္ "၀ံပုေလြမေလး"ႏွင္ ့"ေမ်ာက္မ်က္ႏွာ" တုိ ့ပါ၀င္နုိင္ပါတယ္။သုိ ့ေသာ္ အသက္ ၁၁ ႏွစ္အရြယ္ရွိ ထုိင္းႏုိင္ငံသူေလး ဆူပထရာဆာဆူဖန္ ကေတာ ့ သူမကုိ ကမာၻ ့အေမႊး
အမွ်င္အမ်ားဆံုးမိန္းကေလးအၿဖစ္တရား၀င္အသိအမွတ္ၿပဳလုိက္ႀကၿပီၿဖစ္ေႀကာင္း ယေန ့အခုိင္အမာေၿပာ
ႀကားလိုက္ပါတယ္...
ဘန္ေကာက္ၿမဳိ ့ေတာ္မွ ေက်ာင္းသူေလးဟာ ေက်ာင္းေနဖက္သူငယ္ခ်င္းမ်ားရဲ ့အဆက္မၿပတ္သနားညွာ
တာၿခင္းကင္းစြာ အစအေနာက္ခံေနခဲ ့ရေပမယ္ ့သူမအေနႏွင္ ့ယခုကဲ ့သုိ ့ကမာၻ ့ထူးဆန္းမွတ္တမ္း၊ ဂင္း
နစ္အဖဲြ ့ႀကီး၏ သူမ၏အေမႊးအမွ်င္မ်ားအတြက္ တရား၀င္အသိအမွတ္ၿပဳခံရမွဳေႀကာင္ ့အထူးတစ္လည္လူ
သိထင္ရွားလာခဲ ့ရပါတယ္လို ့ေၿပာႀကားခဲ ့ပါတယ္...
တစ္ကမာၻလံုးတြင္ သူမလုိမ်ဴိးမ်က္ႏွာၿပင္တစ္ခုလံုးအေမႊးအမွ်င္ေပါက္သူအေယာက္ ၅၀ ခန္ ့သာရွိပါတယ္...
ဒါေႀကာင္ ့သမီးကေတာ ့ေပ်ာ္ပါတယ္ လို ့ဆိုတဲ ့အသက္ ၁၁ ႏွစ္အရြယ္ရွိ ဆူပထရာဆာဆူဖန္...
'I'm very happy': Supatra Sasuphan, 11, is one of only 50 people ever to have Ambras syndrome which makes hair grow all over her face. She has now been recognised by the Guinness Book of Records.
" သမီးအေနနဲ ့ကမာၻ ့ထူးဆန္းမွတ္တမ္းမွာ ေဖာ္ၿပခံရတာကုိအလြန္ပဲ၀မ္းသာေပ်ာ္ရႊင္မိပါတယ္...လူအမ်ား
စုက အဲဒီလုိေဖာ္ၿပခံရဖုိ ့အလြန္ႀကဳိးစားေလ ့က်င္ ့လုပ္ေဆာင္ရတာပါ...သမီးကေတာ ့သူတုိ ့ေမးတဲ ့ေမး
ခြန္းေလးေတြေၿဖလိုက္ရံုနဲ ့ပဲ မွတ္တမ္းတင္ခံရေတာ ့တာပါပဲ..." လို ့သူမကေၿပာႀကားခဲ ့ပါတယ္...
ဆူပထရာေလးဟာ ထုိကဲ ့သုိ ့အမ္ဘ၇ာဆန္ဒရုန္းဟုေခၚေသာ ေမြးရာပါဗီဇခြ်တ္ယြင္းမွဳေႀကာင္းၿဖစ္ပြားရ
သည္ ့အၿဖစ္ဆန္းမ်ဴိးၿဖစ္ပြားသူ တစ္ကမာၻလံုးတြင္ အေယာက္ ၅၀ မွ်ထဲမွတစ္ေယာက္အပါအ၀င္ၿဖစ္ၿပီး ထုိ
ကဲ ့သုိ ့ၿဖစ္ရပ္မ်ဴိးဟာ ေရွးယခင္ေခတ္ကတည္းက ( အလယ္ေခတ္ ) ရွိခဲ ့ၿပီး ထုိေရာဂါအေႀကာင္းသိရွိနား
လည္ၿခင္းမရွိေသးခဲ ့စဥ္က ထုိသူမ်ားကုိ "သမန္း၀ံပုေလြ " (မေကာင္းဆုိ၀ါး၀ံပုေလြကလူေယာင္ေဆာင္သူ)
ဟုေခၚဆုိခဲ ့ႀကပါတယ္...
သူမရဲ ့မ်က္ႏွာ၊ နား၊ လက္ေမာင္း၊လက္ဖ်ံမ်ား၊ ေၿခေထာက္မ်ားႏွင္ ့ေက်ာဘက္တုိ ့တြင္ အေမႊးအမွ်င္မ်ားထူ
ထပ္စြာေပါက္ေရာက္ေနႀကၿခင္းၿဖစ္ပါတယ္...
ေလဆာကုထံုးၿဖင္ ့အေမႊးအမွ်င္မ်ားဖယ္ရွားကုသၿခင္းပင္လွ်င္ ေအာင္ၿမင္ၿခင္းမရွိပါဘူး...
တစ္ၿခားေသာထုိသုိ ့အေမႊးအမွ်င္မ်ားေပါက္သူေတြအေနႏွင္ ့လူေတာမတုိး၀ံ ့ပဲ အထီးက်န္သီးၿခားေနေလ ့
ရွိေပမယ္ ့ဆူပထရာကေလးကုိေတာ ့သူမရဲ ့ပါတ္၀န္းက်င္အသိုင္းအ၀န္းက တၿဖည္းၿဖည္းနားလည္လက္ခံ
လာခဲ ့ႀကလို ့ယခုဆုိလွ်င္ေတာ ့သူမဟာ နာမည္ေက်ာ္ႀကားလူသိမ်ားေနၿပီး ၿပင္ပသို ့ထြက္သြားထြက္လာၿပဳ
လုပ္ေနသည္ ့ကေလးတစ္ဦးၿဖစ္လာေနခဲ ့ပါၿပီ....
သမီးတုိ ့ေက်ာင္းရဲ ့နာမည္အႀကီးဆံုး၊ လူႀကဳိက္အမ်ားဆံုးေက်ာင္းသူေလးေပါ ့...
ရတ္ခ်ာဘုိဖစ္ ေက်ာင္းမွာေတာ ့ကမာၻ ့အေမႊးအမွ်င္အမ်ားဆံုးမိန္းကေလးဆုိတဲ ့ဂုဏ္ပုဒ္ေႀကာင္ ့ကုိပဲ
သူမမွာ သူငယ္ခ်င္းေတြတုိးပြားလာေနခဲ့ရပါၿပီ....
'One of the most popular girls in school': Supatra with classmates at Ratchabophit school, where she says getting the record for world's hairiest girl has helped her win more friends.
အခုေတာ ့သူတုိ ့သမီးကုိ မစႀကေတာ ့ပါဘူး...
ေလဆာေရာင္ၿခည္ကုထံုးနဲ ့ကုေပမယ္ ့လည္းအေမႊးေတြကေတာ ့ေပါက္စၿမဲေပါက္လာေနဆဲပါပဲ...
They don't tease me anymore: doctors tried to remove Supatra's hair with laser treatment but it quickly grew back
" အယင္တုံးကလည္း လူနည္းနည္းကပဲသမီးကုိ ေမ်ာက္မ်က္ႏွာႏွင္ ့လူလို ့ေခၚၿပီးစခဲ ့ႀကတာၿဖစ္ၿပီး အခုဆုိ
ယင္ေတာ ့ဘယ္သူမွ မစႀကေတာ ့ပါဘူး...
သမီးအေနနဲ ့အခုလိုအေၿခအေနကိုက်င္ ့သားရေနခဲ ့ပါၿပီ...အေမႊးအမွ်င္ေတြနဲ ့တစ္ခ်ိန္လံုးရွိေနခဲ ့တာမုိ ့အ
ခုဆုိဘယ္လိုမွေတာင္မခံစားရေတာ ့ပါဘူး...
တစ္ခါတစ္ေလေတာ့လည္းအေမႊးေတြအရမ္းရွည္လာယင္နည္းနည္းေတာ ့ဒုကၡေရာက္ရပါတယ္...
တစ္ေန ့ေန ့က်ယင္ေတာ ့ေပ်ာက္သြားလိမ္မယ္လို ့ေမွ်ာ္လင္ ့မိပါတယ္..." လို ့သူမကဆုိခဲ ့ပါတယ္...
( ယခုလိုအေမႊးအမွ်င္ေတြေပါက္ေနတာကလဲြလို ့) ဆူပထရာကေလးဟာ တစ္ၿခားကေလးေတြနဲ ့မၿခားပါပဲ..
သူမဟာ ေရကူး၀ါသနာပါတယ္၊ သူမအႀကဳိက္ဆံုးေတးသြား၊ သီခ်င္းေတြနဲ ့ကရတာကုိလည္းႏွစ္သက္ၿပီး သူ
ငယ္ခ်င္းေတြနဲ ့ကစားရတာကုိလည္းခံုမင္ပါတယ္...
ေနာက္ၿပီး ဘန္ေကာက္ၿမဳိ ့စြန္၊ ပရနခြန္အရပ္က သူမရဲ ့အိပ္ခန္းတစ္ခန္းပါ မိသားစုအိမ္ကေလးမွာ တီဗီ
ေရွ ့ထုိင္ၿပီး ကာတြန္းကားေတြႀကည္ ့ေနရတာကုိလည္း အႀကဳိက္ဆံုးၿဖစ္ပါတယ္...
ေဖေဖရယ္၊ေမေမရယ္၊ မမ ဆူကန္ရာ ရယ္...
Happily families: Suptara with her sister 15-year-old Sukanya, left, her father Sammrueng and mother Somphon
တစ္စိမ္းေတြကေတာ ့ဘန္ေကာက္ၿမဳိ ့လမ္းေတြေပၚမွာေတြ ့ယင္အထူးအဆန္းၿဖစ္လုိ ့သမင္လည္ၿပန္
လွည္ ့ႀကည္ ့ရစၿမဲပါပဲ...ရပ္ကြက္ထဲမွာေတာ့သူမရဲ ့ခ်စ္စရာအမူအရာေလးေတြေႀကာင္ ့
အားလံုးကသူမကုိခ်စ္ႀကပါတယ္...
Still attracting stares: strangers look at Supatra on the streets of Bangkok, but her neighbours say her sweet nature quickly won over her local community
" သမီးကတီဗီကုိေတာ့အရမ္းႀကဳိက္တယ္...ဘာပဲလာလာႀကည္ ့ခ်င္တာပါပဲ...ကာတြန္းကားဆုိယင္ေတာ့
ေၿပာမေနနဲ ့ေတာ့ပဲ...သခ်ာၤလည္းေလ ့လာရတာႏွစ္သက္ပါတယ္...အဲဒါမွကုိယ့္ထက္ငယ္တဲ ့သူေတြကုိၿပန္
သင္ေပနုိင္မွာၿဖစ္ပါတယ္...
သမီးႀကီးယင္ဆရာ၀န္တစ္ေယာက္ၿဖစ္ခ်င္ပါတယ္...ဒါမွ မိဘေတြအနာတ၇ၿဖစ္ယင္ကုသေပးနုိင္မွာၿဖစ္ပါ
တယ္...ထိခုိက္ဒါဏ္ရာရတဲ ့သူေတြကုိ ၿပဳစုကုသေပးခ်င္ပတယ္..." လို ့သူမကေၿပာႀကားခဲ ့ပါတယ္...
စကားေတြေဖာင္ေအာင္ေၿပာတတ္တဲ ့ကေလးမေလးဟာ ယခုကဲ ့သုိ ့ထူးဆန္းတဲ ့အေၿခအေနေႀကာင္ ့သူ
မရဲ ့ဘ၀ကုိ မထိခုိက္ေအာင္ေနဖုိ ့ဆံုးၿဖတ္ခ်က္ခ်ထားပါတယ္...
သို ့ေသာ္လည္းသူမရဲ ့အနာဂတ္ဟာေတာ့အၿမဲတမ္းမေၿဖာင္ၿဖဴးခဲ ့၇ပါဘူး...သူမကုိပထမဦးဆံုးေမြးခဲ ့ၿပီး
ေနာက္မွာပဲ သူမပံုမွန္အသက္ရွဳနုိင္ဖုိ ့ႏွစ္ႀကိမ္ ခဲဲြစိတ္ကုသခဲ ့ရပါတယ္...
" ဆူပထရာကုိေမြးမွပဲ သူ ့အၿဖစ္အပ်က္ကိုကြ်န္ေတာ္တုိ ့သိခဲ ့ရတာပါ...အယင္ကမေမြးခင္တံုးကမသိခဲ ့ရ
ပါဘူး...
သူမရဲ ့ႏွာေခါင္းေပါက္ေလးေတြဟာ တစ္မီလီမီတာသာက်ယ္တာမုိ ့သူမဟာမက်န္းမာလွပါဘူး...
ေမြးၿပီးပထမသံုးလမွာ သူမအသက္ပံုမွန္ရွဴနုိင္ဖုိ ့သူမကုိအပူေပးစက္ထဲမွာထည္ ့ထားခဲ ့၇ပါတယ္...ေဆးရံု
မွာခ်ည္းပဲဆယ္လ ႀကာခဲ ့ရပါတယ္..ကြ်န္ေတာ္တုိ ့ၿဖင့္သူ ့အတြက္ေတာ္ေတာ္ကုိစိုး၇ိမ္ခဲ ့ႀကရတာပါ..." လုိ ့
အသက္ ၃၈ ႏွစ္ရွိ ဖခင္ၿဖစ္သူ ဆမ္မ၇န္း ကေၿပာႀကားခဲ ့ပါတယ္...
အေမႊးညွပ္ဖုိ ့အခ်ိန္ေရာက္ၿပီ...အသက္ကေလးရလာေလ အေမႊးအမွ်င္ေတြကရွည္လာေလမုိ ့
မိခင္ၿဖစ္သူက ကတ္ေႀကးနဲ ့ညွပ္ေပးေနရပါတယ္...
Time for a trim: Supatra's hair grew longer as she got older and her mother now cuts it with scissors, above
အတန္းေဖာ္ေတြနဲ ့ကာယေလ ့က်င္ ့ခန္းလုပ္ေနတဲ ့ဆုပါထရာ....
Outgoing child: Supatra during a PE lesson with classmates
သူမအသက္ႏွစ္ႏွစ္မွာ ေနာက္ထပ္ခဲြစိတ္ကုသမွၿပဳလုပ္ခဲ ့ၿပီးေနာက္အခုအခါမွာေတာ ့ပံုမွန္အသက္ရွဴလုိ ့
ရေနပါၿပီ...
သုိ ့ေသာ္လည္း ဆန္မရန္းနဲ ့ဇနီးသည္ ဆြန္ဖြန္တုိ ့ဟာ သမီးေလးဆူပထရာကုိ ယခုအခါအသက္ ၁၅ႏွစ္ရွိ
ၿပီၿဖစ္တဲ ့ သမီးႀကီးၿဖစ္သူ ဆူကန္ယာနဲ ့အတူေနဖုိ ့အိမ္ကုိေခၚလာခဲ ့တဲ ့အခါမွာေတာ့ ၿပႆနာေတြႀကံဳလာ
ခဲ ့၇ပါေတာ ့တယ္...
" ကြ်န္ေတာ္တုိ ့ရဲ ့အိမ္နီးခ်င္းေတြက ပထမေတာ ့ကေလးကုိၿမင္ၿပီး ကြ်န္ေတာ္ဘာအကုသုိလ္ေတြမ်ားလုပ္
ထားခဲ ့ၿပီလည္းလို ့ေမးႀကပါတယ္...
သမီေလးႀကီးလာလို ့တစ္ၿခားကေလးေတြက စယင္ဘယ္လိုမ်ားေနပါလိမ္ ့မလည္းလို ့အလြန္ပဲစုိးရိမ္မိခဲ ့ရ
ပါတယ္..." လို ့ဖခင္ၿဖစ္သူကဆုိပါတယ္...
ဒါေပမယ္ ့သူမရဲ ့ခ်စ္စရာစရုိက္ေလးမ်ားက အိမ္နီးခ်င္းနဲ ့ရပ္ကြက္ထဲကလူေတြကုိ ဖမ္းစားနုိင္ခဲ ့ပါတယ္....
ပန္းထိမ္ဆရာဆန္မရြန္း က " သမီးေလးဟာ တစ္ၿခားသူေတြနဲ ့အလြန္ကုိခင္မင္တတ္ၿပီးအလြန္လည္းသ
ေဘာေကာင္းပါတယ္...သူငယ္ခ်င္ေတြဆုိလည္းအမ်ားႀကီးပါပဲ...သူနဲ ့သက္တူရြယ္တူတစ္ၿခားကေလးေတြ
နဲ ့ဘာမွမၿခားပဲ အတူတူပဲၿဖစ္ပါတယ္...
ဒါေပမယ္ ့သူမသြားေလးေတြေပါက္တာေႏွးၿပီး မ်က္ေစ ့လည္းနည္းနည္းမွဳံပါတယ္..." လို ့သူကဆက္ေၿပာ
ၿပခဲ ့ပါတယ္...
သူမအသက္ ၂ ႏွစ္အရြယ္မွာ ဆရာ၀န္ေတြအေနႏွင္ ့သူမရဲ ့အေမႊးအမွ်င္မ်ားကို ေလဆာကုထံုးၿဖင္ ့အႀကိမ္
ႀကိမ္ဖယ္ရွားကုသေပးခဲ ့ေပမယ္ ့ယခင္ကထက္ပိုၿပီးအေမႊးမ်ားလ်င္ၿမန္စြာၿပန္ေပါက္လာေလ ့ရွိခဲ ့ပါတယ္...
သူမအသက္ႀကီးလာတာႏွင့္အမွ် အေမႊးအမွ်င္မ်ားလည္းပုိမုိထူထဲစြာေပါက္လာေနတာမုိ ့သူမရဲ ့မိခင္ၿဖစ္သူ
အေနႏွင့္ပံုမွန္ ညွပ္ေပးေနခဲ ့ရပါတယ္....
ေခါင္းေလွ်ာ္ရည္အၿပင္းစားမ်ားနွင္ ့လည္းမတည္ ့တာမုိ ့သူမဟာ ကေလးငယ္မ်ားအတြက္သံုးသည္ ့ေခါင္း
ေလွ်ာ္ရည္ကုိသာသံုးေနရပါတယ္...
" တစ္ေန ့ေတာ ့ သမီးေလးရဲ ့ေရာဂါ ( အေမႊးအမွ်င္ေတြ ) ေပ်ာက္သြားလိမ္ ့မယ္လုိ ့ကြ်န္ေတာ္ကေတာ ့
ယံုႀကည္ေမွ်ာ္လင္ ့ပါတယ္...ေရာဂါေပ်ာက္ကင္းသက္သာမယ္ဆုိဘာပဲလုပ္ရလုပ္ရ ကြ်န္ေတာ္တုိ ့လုပ္မွာ
ၿဖစ္ပါတယ္..." လို ့ဖခင္ၿဖစ္သူ ဆန္မ၇ြန္း ကေၿပာႀကားခဲ ့ပါတယ္...
ၿမန္မာနုိင္ငံမွ တစ္ေခတ္တစ္ခါက လူေမ်ာက္ေမာင္ေရႊေမာင္မိသားစု
( အခုေတာ ့မ်ဴိးရုိးဗီဇခြ်တ္ယြင္းမွဳေႀကာင္ ့လုိ ့ၿဖစ္တာသိႀကရၿပီေပါ ့ဗ်ာ...)
(ဓါတ္ပံုမ်ားကုိ ၀ီကီၿမန္မာက ရွာေဖြေတြ ့ရွိတင္ၿပပါတယ္...)
ေမႊးအမွ်င္မ်ားဖံုးလႊမ္းေပါက္ေရာက္ေနသည္ ့လူေမ်ာက္ ေမာင္ေရႊေမာင္ဆုိသူရွိခဲ ့ၿပီး ထုိသူမွတစ္ဆင္ ့အိမ္
ေထာင္ၿပဳကာ သမီးမယ္ပံုဆုိသူသည္လည္းဖခင္ကဲ ့သို ့ပင္တစ္ကိုယ္လံုးအေမႊးအမွ်င္မ်ားဖံုးလႊမ္းေပါက္ေန
ခဲ ့ကာ ထုိမယ္ပံုမွေမြးေသာသား ေမာင္ဆယ္ႏွင္ ့သမီးမယ္မိ တုိ ့မွာလည္း တစ္ကိုယ္လံုးအေမႊးအမွ်င္မ်ား
ေပါက္ေနခဲ ့တယ္လုိ ့ဆုိပါတယ္...
ေနာက္ဆံုး ၎မယ္ပံုတုိ ့မိသားစု ၿပင္သစ္နုိင္ငံမွ ဆပ္ကပ္အဖဲြ ့တစ္ခုသို ့ေရာက္ရွိသြားခဲ ့ေႀကာင္းမွတ္သား
သိရွိခဲ ့ရဖူးပါတယ္....
၎တုိ ့မိသားစုအေႀကာင္းကုိ ညီလင္းဆက္ ကသူ ့ဘေလာ ့ဂ္မွာအက်ယ္တ၀င္ ့ေရးထားပါတယ္...
Her nicknames may include 'wolf girl' and 'monkey face'.
But 11-year-old Thai girl Supatra Sasuphan today insisted that she was after being officially recognised as the world's hairiest girl.
Although the schoolgirl from Bangkok has faced merciless teasing at school, Supatra says being given a Guinness World Record for her hair has helped her become extremely popular.
'I'm very happy to be in the Guinness World Records! A lot of people have to do a lot to get in,' she said. 'All I did was answer a few questions and then they gave it to me.'
Supatra is one of just 50 known sufferers of Ambras Syndrome - caused by a faulty
chromosome - to be documented since the Middle Ages. Before the disease was understood, sufferers were branded 'werewolves.'
She has thick hair growing over her face, ears, arms, legs and back. Even laser treatment has failed to stop the hair growth.
But while most sufferers have been shunned, Supatra has gradually been embraced by her community, and became a popular and outgoing child.
She said: 'There were a few people who used to tease me and call me monkey face but they don't do it any more.
'I'm very used to this condition. I can't feel the hair as it has always been like this. I don't feel anything.
It does sometimes make it difficult to see when it gets long.I hope I will be cured one day.'
In other ways Supatra is the same as other children her age - she loves swimming, dancing to her favourite music and playing with friends.
But more than anything, Supatra loves perching in front of the TV at her tiny one-bedroom family home in Pranakom, on the outskirts of Bangkok, to watch cartoons.
She said: 'I like to watch anything on TV, whatever is, I like having it on. I like to watch Bugs Bunny.'
The bubbly little girl is also determined not to let her condition prevent her from leading a normal life.
She said: 'I like to study maths so I can be good at it and teach it to younger children so they can do it too.
'I want to become a doctor so I can help patients when they get injured.
'I want to help people who get hurt and help cure people.'
But Supatra's future didn't always look so promising. When she was first born she had to undergo two operations just to breathe.
Her father Sammrueng, 38, said: 'We found out Supatra's condition when she was born - we did not know before.
'She was not very healthy because her nostrils were only one millimetre wide. For the first three months she was kept in an incubator to help her breathe.She was in the hospital for a total of ten months. We were very worried about her.'
Supatra has another operation when she was two-years-old and can now breathe normally.
But when Sammrueng and his wife Somphon, 38, brought Supatra home to live with them and their other daughter Sukanya, now 15, they faced more problems.
'When neighbours first saw Nat they asked what kind of sin I had done. I was very worried about what she would be when she grew up because of other children teasing her,' he said.
But Supatra's sweet nature quickly won over people in her community.
Sammrueng, a jewellery maker, said: 'She gets along with others really well and is very generous. She has a lot of friends.
'She is just the same as any other little girl her age.
'But her teeth grow slowly and she can't see very well."
Doctors tried to remove the hair with laser treatment when she was two-years-old but despite numerous sessions it kept growing back as thickly as before.
Supatra's hair has got increasingly thicker as she has grown up so her mother has to cut it back regularly for her.
She uses baby shampoo to wash her hair as she is allergic to stronger brands.
Sammrueng said: 'I still hope one day she will be cured. We will do anything we can if it will help her.'
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